Wednesday, September 19, 2007
Kidney Disease and Child Insomnia..My SON??
There are many different kinds of Kidney diseases. I am not sure whether it is hereditary but the kidney disease my son has is very similar to the ailment I had when I was almost his age. Our pediatric nephrologist told us that there are no conclusive proof yet that this disease is hereditary. Our doctor even said that we are his first patient that both father and son had this similar ailment called nephrotic syndrome.
As a little boy, I was subjected to strict diets and limited activities due to risk of infection. Similarly my son is going through similar experience. He is naturally a very energetic social boy and is always curious about everything. We even nick name him "Curious George" especially when he is on full dose steroids. His cheek will round up like apples and he loves to smile with a mischievous look on his face.
Among some of the side effects from the five different kinds of medication he is taking are insomnia, suppressed immune system, mood swings and a significant increase in appetite. These are the short term side effects while long term side effects could be cancer or even further damage to the kidney. I honestly don't remember the side effect I suffered from with the exception of the mood swings and increase in appetite. I would bulk up one week and then slim down the week after. A change of 10lbs can occur within 7 days especially during the first few days of recovery, given the fact that a lot of weight gain is from water retention.
In my son's case, his church friends think that he is cute and has the ability to bulk up one week then slims down the next. It brings new meaning to "Elastic Boy!" He's like a new kid in town each week given the changes to his body. I am glad he is at least emotionally undisturbed by this condition. The side effects that does take its toll in many ways is insomnia. We notice after the last hospital stay a few weeks back, his doctor actually had to increase on one of his medication dosage and hence his insomnia becomes more apparent. He normally goes to bed around 9.30 but nowadays he won't get to bed and be really sleeping until 11.30pm or sometimes even at midnight.
He still gets up in the middle of the night sometimes several times to use the bathroom and then he wakes up at the same time in the morning which is early! Sleeping is an important part of growth and we worry that the lack of sleep would further lessen his immune system and physical growth.
A few nights ago as usual he woke up to use the bathroom. He would normally come to our room and wake one of us up to take him to the bathroom. He noticed daddy wasn't on the bed and mommy was sleeping alone. He didn't think too much about it until the morning. He woke up and started asking me why didn't you sleep with mommy last night? I didn't say much except telling him that daddy needed to sleep on the floor.
More of the story in Patient King